Voices of AHP

Hear from people about their experiences living with
acute hepatic porphyria (AHP)

AHP is a chronic disease that can place a heavy burden on the lives of patients and their loved ones. Hear from Sue and Alicia how they were diagnosed with acute hepatic porphyria, how they cope with it and how it affects their daily lives.

 

Sue, living with AHP

"I’m advocating to try and make sure there’s a lot of awareness, disease awareness. To make sure that my little girl doesn’t suffer, in the same way that me and my sister have. Because no one should suffer in the way that we have."
 

 


Alicia, living with AHP

"So you’ve always got to take every day as it comes, and hope that you’ll get through the attack with your friends, your family, the medication, the doctors, so you can carry on and have a future."