– Sue, living with AHP

Diagnosing AHP

The earlier the diagnosis, the better

Early, accurate diagnosis of AHP may make a real difference in a person's quality of life by enabling them to:

  • Take steps to manage factors that may trigger symptoms
  • Understand what is happening in their bodies and why
  • Avoid the complications that result from misdiagnoses and unnecessary surgeries

How AHP is diagnosed

People who may be experiencing symptoms and suspect AHP should ask their doctor to have their urine tested for porphyria. Below, you can see how doctors arrive at an AHP diagnosis. After the urine tests, genetic tests can be used to confirm the specific type of AHP.

  • Rule out other conditions

If you suspect symptoms of AHP, it’s important to talk with your doctor. The Doctor Discussion Guide below will help you have a conversation about AHP.

Person diagnosed with acute hepatic porphyria