Stay informed with resources about AHP
There is a range of resources designed to help people understand acute hepatic porphyria (AHP) and handle the challenges of living with the disease. A great starting point is downloading a printable Doctor Discussion Guide. Once the Guide is downloaded, you can complete each section and then bring it to an upcoming doctor appointment. This can help start conversations about whether you should be tested for AHP.
I’ve been involved with the porphyria charity for quite a few years now, about 12 years. And I’ve been passionate about the work I do. But since having my daughter, it’s a whole different fuel. You’re not doing it just for you anymore, you’re doing it because there’s somebody else that potentially could need something bigger in the future.— Sue, living with AHP