The pain is across
all of your body
and just resonates
Some people describe it
as like fire.
that is just burning all over their body
and that they just
can’t do anything to make it better.
It’s acute hepatic porphyria.
COULD IT BE ACUTE HEPATIC PORPHYRIA (AHP)?
Acute Hepatic Porphyria typically causes episodes of severe unexplained abdominal pain together with one or more of the following symptoms: limb, back, or chest pain, nausea, vomiting, confusion, anxiety, seizures, weak limbs, constipation, diarrhoea, or dark or reddish urine.
The experience may have sent you on repeat doctor or hospital visits over the years, often resulting in different suspected diagnoses.
If this sounds at all familiar, it may be a family of rare genetic diseases called Acute Hepatic Porphyria, or AHP.
AHP is a disease that people may experience differently. It has a wide array of symptoms that often mimic those of other diseases, making diagnosis difficult. AHP can even cause potentially life-threatening attacks.
The good news is that there is support available and a simple way to test for AHP. This website provides education, resources, and information on how to get tested, so you can get answers.
If you are currently experiencing symptoms please call 111. or visit 111.nhs.uk.