–Sue, living with AHP

The pain is across all of your body

 

and just resonates everywhere.

 

Some people describe it as like fire.

 

that is just burning all over their body and that they just

 

can’t do anything to make it better.

It’s acute hepatic porphyria.

 
- Sue, living with AHP
The pain is across all of your body
and just resonates everywhere.
Some people describe it as like fire
that is just burning all over their body and that they just
can’t do anything to make it better.
It’s acute hepatic porphyria.
Uncover the disease >

COULD IT BE ACUTE HEPATIC PORPHYRIA (AHP)?

Acute Hepatic Porphyria typically causes episodes of severe unexplained abdominal pain together with one or more of the following symptoms: limb, back, or chest pain, nausea, vomiting, confusion, anxiety, seizures, weak limbs, constipation, diarrhoea, or dark or reddish urine.

The experience may have sent you on repeat doctor or hospital visits over the years, often resulting in different suspected diagnoses.

If this sounds at all familiar, it may be a family of rare genetic diseases called Acute Hepatic Porphyria, or AHP.

AHP is a disease that people may experience differently. It has a wide array of symptoms that often mimic those of other diseases, making diagnosis difficult. AHP can even cause potentially life-threatening attacks.

The good news is that there is support available and a simple way to test for AHP. This website provides education, resources, and information on how to get tested, so you can get answers.

If you are currently experiencing symptoms please call 111. or visit 111.nhs.uk.

If you suspect you are having symptoms of AHP, it is important to talk with your doctor about simple tests that can confirm a diagnosis.